Mischa(10) has Duchenne muscular dystrophy. It affects the whole family. We meet his father, Ronald. Garage owner Ronald has really had to cut back. Things are difficult in the car trade. But as a born salesman, he will survive. Ronald Udinga is a fighter. He tells us about his son Mischa.
'Your world collapses. I stood there crying in the showroom. My son has a gene which is slowly but surely wasting away his muscles.' At the UMC St Radboud hospital in Nijmegen, Mischa underwent extensive tests and the final verdict came as a sledgehammer blow: Duchenne muscular dystrophy (DMD). For the most part, this disease only affects boys. It is a wasting disease which gradually causes the body to degenerate. Children with DMD do not get old. There is still no treatment.
Ronald tells us about the impact this has had on his family. 'It actually feels like you all have DMD. Nothing is easy any more. For example, if you want to go out for a meal, you have to organise all kinds of things in advance. Our whole life revolves around Mischa. My wife Juliette and I have three children and we would have loved to be able to give them a different life. But things are the way they are. We just have to make the most of them. We would do anything for Mischa.'